Image courtesy of CS Mott Children's Hospital Pediatric Palliative Care Team under a Creative Commons license: BY.
This series of workshops provides skills to pediatric physicians, nurses, respiratory therapists and other health professionals that will improve their ability to care for pediatric patients who are dying in the hospital. We have developed three workshops which each take about 90 minutes. These workshops feature videos of simulated doctor/patient interactions, worksheets, self-evaluations, and more. Click the "Sessions" tab for a complete view of the content for each workshop.
We are working this year on interactive modules that will be useful for self-study and reinforcement of key knowledge and skills.
Creators:
CS Mott Children's Hospital Pediatric Palliative Care Team, University of Michigan
Ken Pituch, Tricia Keefer, Jim Azim, Terry Murphy, Matthew Niedner, Rita Ayyangar, Cecilia Trudeau, Karyn Schoem, Maureen Giacomazza, Pat Lyndale, D'Anna Saul, Adam Marks.
Structure: Professional Development Workshop Series with Videos
Learning Objectives
Case 1: Anticipated death on the newborn unit
- Identify the sources of distress in the family and the support staff
- Learn questions and answers to the common sources of distress in those caring for a dying baby.
- Assess dyspnea and pain
- Know doses and routes of at least one opioid
- Learn phrases that can reassure the family that using an opioid is safe and appropriate.
- Understand and explain the benefits vs. burdens of artificial hydration/nutrition.
- Learn one intervention for decreasing bothersome secretions.
- Give anticipatory guidance regarding how the death might look.
- Identify three ways that families may be able to create valuable memories.
- Perform a legal death exam.
- Review the ‘check list’ of post-mortem care items.
- Learn phrases that may comfort family members.
Case 2: Adolescent Death on the Ward
- Identify the sources of distress in the patient, the family and the support staff
- Practice using language that can comfort and reassure patients and families.
- Recognize the need for autonomy in the ill and dying adolescent
- Assess dyspnea and pain
- Know doses and routes of at least one opioid
- Learn phrases that can reassure the family that using an opioid is safe and appropriate.
- Distinguish delirium from agitation near end of life
- Identify sources of agitation in a dying patient
- Describe at least one pharmacologic and one non-pharmacologic method to treat agitation near the end of life.
- Explain the process for approaching patients and families regarding autopsy and gift of life.
- Review the ‘check list’ of post-mortem care items.
- Learn phrases that may comfort family members.
Case 4: Death in the Hospital from Terminal Cancer
- Identify the sources of distress in the patient, the family and the support staff
- Practice using language that can comfort and reassure patients and families.
- Assess dyspnea and pain
- Know doses and routes of at least one opioid
- Use phrases that can reassure the family that using an opioid is safe and appropriate.
- Recognize treatable causes of nausea and vomiting
- Describe at least one pharmacologic and one non-pharmacologic method to treat significant nausea and vomiting near the end of life
- Describe at least one pharmacologic and one non-pharmacologic method to minimize the distress of bleeding near the end of life
- Demonstrate language that can reassure patients or family members who are worried about bleeding
- Explain the process for approaching patients and families regarding autopsy and gift of life.
- Review the ‘check list’ of post-mortem care items.
- Demonstrate language that may comfort family members after a death
About the Creators
CS Mott Children's Hospital Pediatric Palliative Care Team
The Pediatrics Palliative Care Team offers active, comprehensive support for managing patients with life-threatening or life-limiting conditions. Palliative care can be appropriate at all stages of illness, not just the terminal phase, and can be provided at the same time as active or life-prolonging treatments. The group assists with many aspects of care, including symptom management, communication challenges, complex decision-making, advance care planning and transitions throughout the course of an illness. The team works closely with unit and hospital-based resources to offer seamless support to our primary teams, patients and families. The Palliative Care team is multidisciplinary, represented by a physician, an advance practice nurse, a social worker and a pastoral care professional.
For more information, visit the CS Mott Children's Hospital Palliative Care Consultation Services page.
Image courtesy of CS Mott Children's Hospital Pediatric Palliative Care Team under a Creative Commons license: BY.
Jump to:
| Document Title | Creator | Downloads | License |
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01(c): Please Keep Our Baby Comfortable: An Anticipated Death on the Newborn Unit |
CS Mott Children's Hospital Pediatric Palliative Care Team
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02(c): Tell Mom I'm Not Afraid to Die: Adolescent With End-Stage Cystic Fibrosis |
CS Mott Children's Hospital Pediatric Palliative Care Team
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04(c): Death in the Hospital from Terminal Cancer: But She's Always Been Such a Fighter |
CS Mott Children's Hospital Pediatric Palliative Care Team
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| Document Title | Creator | Downloads | License |
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01(b): Anticipated Death on the Newborn Unit: Blank Worksheet |
CS Mott Children's Hospital Pediatric Palliative Care Team
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02(b): Adolescent Death on the Ward: Blank Worksheet |
CS Mott Children's Hospital Pediatric Palliative Care Team
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04(b): Death in the Hospital from Terminal Cancer: Blank Worksheet |
CS Mott Children's Hospital Pediatric Palliative Care Team
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| Document Title | Creator | Downloads | License |
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01(d): Anticipated Death on the Newborn Unit: Filled Out Worksheet, Case 1 |
CS Mott Children's Hospital Pediatric Palliative Care Team
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02(d): Adolescent Death on the Ward: Filled Out Worksheet, Case 2 |
CS Mott Children's Hospital Pediatric Palliative Care Team
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04(d): Death in the Hospital from Terminal Cancer: Filled Out Worksheet, Case 4 |
CS Mott Children's Hospital Pediatric Palliative Care Team
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Values-Guided Decisions Support |
CS Mott Children's Hospital Pediatric Palliative Care Team
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| Document Title | Creator | Downloads | License |
|---|---|---|---|
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01(a): Anticipated Death on the Newborn Unit: Learning Objectives |
CS Mott Children's Hospital Pediatric Palliative Care Team
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02(a): Adolescent Death on the Ward: Learning Objectives |
CS Mott Children's Hospital Pediatric Palliative Care Team
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04(a): Death in the Hospital from Terminal Cancer: Learning Objectives |
CS Mott Children's Hospital Pediatric Palliative Care Team
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05: Self-evaluation Form for End of Life Skills |
CS Mott Children's Hospital Pediatric Palliative Care Team
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06: End-of-Life Algorithms Pocket Card |
CS Mott Children's Hospital Pediatric Palliative Care Team
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Course/Resource Archive in Institutional Repository (October 2012) |
CS Mott Children's Hospital Pediatric Palliative Care Team
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End-of-Life Algorithms Pocket Card - Instructions on iPhone download |
CS Mott Children's Hospital Pediatric Palliative Care Team
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End-of-Life Algorithms Pocket Card Reference List |
CS Mott Children's Hospital Pediatric Palliative Care Team
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ICU Case Cards |
CS Mott Children's Hospital Pediatric Palliative Care Team
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Image courtesy of CS Mott Children's Hospital Pediatric Palliative Care Team under a Creative Commons license: BY.
Jump to:
| Document Title | Creator | Downloads | License |
|---|---|---|---|
|
Values-Guided Decisions Support |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
|
| Document Title | Creator | Downloads | License |
|---|---|---|---|
|
01(a): Anticipated Death on the Newborn Unit: Learning Objectives |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
|
|
|
01(b): Anticipated Death on the Newborn Unit: Blank Worksheet |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
|
|
|
01(c): Please Keep Our Baby Comfortable: An Anticipated Death on the Newborn Unit |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
|
|
|
01(d): Anticipated Death on the Newborn Unit: Filled Out Worksheet, Case 1 |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
|
|
|
05: Self-evaluation Form for End of Life Skills |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
|
|
|
06: End-of-Life Algorithms Pocket Card |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
|
| Document Title | Creator | Downloads | License |
|---|---|---|---|
|
02(a): Adolescent Death on the Ward: Learning Objectives |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
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02(b): Adolescent Death on the Ward: Blank Worksheet |
CS Mott Children's Hospital Pediatric Palliative Care Team
|
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02(c): Tell Mom I'm Not Afraid to Die: Adolescent With End-Stage Cystic Fibrosis |
CS Mott Children's Hospital Pediatric Palliative Care Team
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02(d): Adolescent Death on the Ward: Filled Out Worksheet, Case 2 |
CS Mott Children's Hospital Pediatric Palliative Care Team
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| Document Title | Creator | Downloads | License |
|---|---|---|---|
|
04(b): Death in the Hospital from Terminal Cancer: Blank Worksheet |
CS Mott Children's Hospital Pediatric Palliative Care Team
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04(c): Death in the Hospital from Terminal Cancer: But She's Always Been Such a Fighter |
CS Mott Children's Hospital Pediatric Palliative Care Team
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04(d): Death in the Hospital from Terminal Cancer: Filled Out Worksheet, Case 4 |
CS Mott Children's Hospital Pediatric Palliative Care Team
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